Sleeves Up for Piper!

Piper riding her bike at CHOP after her 4th open heart surgery. The machine behind her is called the VAD and is pumping her heart until a new one is available.
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Four and a half years ago, Piper was born with a congenital heart condition called Hypoplastic Left Heart Syndrome, in which the left side of her heart did not form correctly in utero. In her first three years of battling this defect, she underwent a course of treatment involving three open heart procedures in hopes she could go on to live a normal life our spunky girl was destined to have. At her one-year post-operative appointment from her third open heart surgery, she received a glowing evaluation and we all breathed a sigh of relief.
Shortly after Thanksgiving 2018, however, Piper returned to the Children’s Hospital of Philadelphia (CHOP) because of a concerning report from her local cardiologist. She was immediately admitted and diagnosed with heart failure. It was quickly determined she would need a heart transplant and in December 2018, she was officially placed on the UNOS transplant list at the highest status. Unfortunately, her heart function continued to decline and in February 2019, she underwent a fourth open heart procedure to place a mechanical device that will pump her heart until her a new heart becomes available.

While her support team has considerable concern for her survival, this little girl proves to us over and over how resilient she is, and we are optimistic her new heart is on the horizon.

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