4-year-old Auburn Boy with Rare Syndrome Seeks Match for Bone Marrow Transplant
Four-year-old Bryce is a fun kid who loves sports and animals.
“A spunky little firecracker,” his mom calls him.
But in January, after many health scares, doctors discovered the Auburn boy has a rare syndrome called Hyper-IgM.
Mom, Julie Creedon Linton said, “He really just doesn’t have an immune system. His body makes a lot of the igMs which just go around your body, They don’t make any special forces that attack the viruses or bacteria.”
Creedon-Linton says people with the syndrome don’t tend to live past their 20s or 30s.
Right now, Bryce receives blood plasma transfusions every other week, but he could be cured with a bone marrow transplant by the time he turns eight.
“But there’s no guarantee we will find a donor in four years,” Creedon-Linton says.
The coronavirus is impacting both bone marrow and blood plasma donations. Nonprofit Be the Match is turning to at-home test kits to keep their numbers up.
Community engagement supervisor for the Rhode Island Blood Center Be the Match team, Ann Evans, said, “We are missing the opportunities to be in person at places we normally would be under normal circumstances.”
We will have Be the Match at our Webster PD blood drive on 7/1 9a-2p and Auburn Fire Dept drive 7/2 3p-7p. Please come down or visit bethematch.org to order a kit to be sent to your home!